Showing posts with label #Racism. Show all posts
Showing posts with label #Racism. Show all posts

Friday, February 1, 2019

Sojourner Truth Was A Disabled Social Justice Activist

Truth is powerful and it prevails.
Sojourner Truth

Sojourner Truth, albumen silver print, circa 1870
from the National Portrait Gallery, Smithsonian Institution.
It's Black History Month, and the corporate response to this year's remembrance is to finally lead with Sojourner Truth. They might tell you her name was Isabella Baumfree, although she left her slave name behind when she gained freedom. They might tell you she escaped her bondage with her infant daughter. They might add she successfully went to the U.S. court system and sued to free her son from bondage. They might post all or part of her iconic speech some titled "Ain't I A Woman?"

What few if any will mention, so I mention it every February, is that Sojourner Truth became a famous human rights activist and Black feminist after suffering repeated physical and emotional injury at the hands of her slaveholders.

So when you read about Sojourner Truth, understand that she was a disabled black feminist who went on to become a public speaker despite not knowing how to read or write,  learned about and understood the justice system enough to enlist help and use it to fight for her son's freedom outright rather than try spiriting him through the underground railroad. She recruited Black soldiers to fight for the Union Army during the Civil War. She eventually became a property owner through her own efforts. She accomplished all this while living with the effects of surviving physical and emotional abuse and pain that defined the arc of her life.

People question Sojourner Truth's competence to deliver speeches in English and point to the conflicting voices in her memoir.  I actually don't. As professor Jewon Woo points out in "Performing Bodies and Performative Texts," Sojourner Truth's illiteracy did not deny her agency in the creation of literature related to her life experiences or speeches. Per Professor Woo, "that the lack of her own authorial voice paradoxically highlights Truth’s control over their writings. I argue that because her story was not being fixed by one scribal voice, Truth could weaken the authority of literate others and present herself as a central force of various observers’ writings collected in the Narrative. " Professor Woo's work aligns with the presumption of competence rarely granted to disabled people. 

We know Sojourner Truth went on mass speaking tours with other emancipated slaves, and we know she obviously could not give speeches across America in Dutch, nor could she have recruited English speaking  Black soldiers who were emancipated slaves into the army speaking Dutch.

There is this lack of willingness to accept that history is always written as if freedom and any level of competence for African Americans came exclusively from white abolitionists' singular efforts and not a united effort where African Americans were equal partners in their own liberation.

For someone who was disabled and a woman from what was then one of the most marginalized groups to create a successful career as a public speaker and generate a memoir with support from literate abolitionists also defies modern presumptions of incompetence that cast an ableist shadow over the lives of adults with neurodivergent labels like nonverbal autism, where literacy is often denied them because of structural ableism. Probably the greatest barrier to literacy for nonverbal autistic people is a structural ableist attitude that insists making any genuine effort to make neurodivergent nonspeakers literate is a waste of time.

We have evidence that many literate slaves defied unjust laws and threats to their lives and taught others by lamplight in secret. Holes were literally dug in the ground for this exact purpose. The presumption that she would not speak in the dialect written during her speech shows a lack of willingness to understand the successes disabled people have had throughout history in creating and customizing adaptive solutions to barriers by disabled adults as well.

 Because of conflicting historical accounts of Sojourner Truth's life, how she spoke English remains a mystery. There is no recording of her speech and sparse and conflicting outlines of her life. We do know that she enlisted the help of literate abolitionist friends like Olive Gilbert, to write her memoir. I am trilingual. I can assure you that if you grow up around more than one language, disabled or not, you can learn to grasp many languages because your brain is prepared to simply code switch when needed. To this day, African Americans code switch from AAVE to English by necessity. Why is it hard for historians to fathom that Sojourner Truth may have done the same? 

I also need to point out that the narrative of Sojourner Truth's life intersected race, religion and political ambitions and agendas. This complicates accurate views of her life since Christians used her to stand for evangelical devotion, abolitionists used her to represent the reason their cause was just, and political forces needed her to recruit Blacks for war. 

When you read about Sojourner Truth today, remember everything she accomplished after freedom was accomplished as a Disabled Black Woman. She dared to be a feminist when Black women were made to march behind so as not to upset white Southern feminists. She dared to do what no one else had done and yet her disabled identity is ignored or erased.

 Right now, in the age of infantilization, ableism, hate crimes against marginalized people and the presumption of incompetence, remembering Sojourner Truth and reclaiming her Black Disabled feminist identity need to happen.

Here's her groundbreaking speech as reported by Marius Robinson, and the later version by Gage. Read it understanding that this was a woman who was disabled and neurodivergent and instill disability pride in your loved ones of color.

The Speech
Marius Robinson, who attended the convention and worked with Truth, printed the speech as he transcribed it on June 21, 1851, issue of the Anti-Slavery Bugle.

One of the most unique and interesting speeches of the convention was made by Sojourner Truth, an emancipated slave. It is impossible to transfer it to paper or convey any adequate idea of the effect it produced upon the audience. Those only can appreciate it who saw her powerful form, her whole-souled, earnest gesture, and listened to her strong and truthful tones. She came forward to the platform and addressing the President said with great simplicity: "May I say a few words?" Receiving an affirmative answer, she proceeded:

I want to say a few words about this matter. I am a woman's rights. [sic] I have as much muscle as any man, and can do as much work as any man. I have plowed and reaped and husked and chopped and mowed, and can any man do more than that? I have heard much about the sexes being equal. I can carry as much as any man, and can eat as much too, if I can get it. I am as strong as any man that is now. As for intellect, all I can say is, if a woman have a pint, and a man a quart – why can't she have her little pint full? You need not be afraid to give us our rights for fear we will take too much, – for we can't take more than our pint'll hold. The poor men seems to be all in confusion, and don't know what to do. Why children, if you have woman's rights, give it to her and you will feel better. You will have your own rights, and they won't be so much trouble. I can't read, but I can hear. I have heard the bible and have learned that Eve caused man to sin. Well, if woman upset the world, do give her a chance to set it right side up again. The Lady has spoken about Jesus, how he never spurned woman from him, and she was right. When Lazarus died, Mary and Martha came to him with faith and love and besought him to raise their brother. And Jesus wept and Lazarus came forth. And how came Jesus into the world? Through God who created him and the woman who bore him. Man, where was your part? But the women are coming up blessed be God and a few of the men are coming up with them. But man is in a tight place, the poor slave is on him, woman is coming on him, he is surely between a hawk and a buzzard.

The Speech reported by Gage
This appears in History of Women's Suffrage
Matilda Joslyn Gage's version appears in 1863 and while there is evidence of Truth's agency in the transcription of Robinson's version of her speech, the same is not true for Gage's version here:

"Wall, chilern, whar dar is so much racket dar must be somethin' out o' kilter. I tink dat 'twixt de n[expletive]s of de Souf and de womin at de Norf, all talkin' 'bout rights, de white men will be in a fix pretty soon. But what's all dis here talkin' 'bout?

"Dat man ober dar say dat womin needs to be helped into carriages, and lifted ober ditches, and to hab de best place everywhar. Nobody eber helps me into carriages, or ober mud-puddles, or gibs me any best place!" And raising herself to her full height, and her voice to a pitch like rolling thunder, she asked. "And a'n't I a woman? Look at me! Look at my arm! (and she bared her right arm to the shoulder, showing her tremendous muscular power). I have ploughed, and planted, and gathered into barns, and no man could head me! And a'n't I a woman? I could work as much and eat as much as a man—when I could get it—and bear de lash as well! And a'n't, I a woman? I have borne thirteen chilern, and seen 'em mos' all sold off to slavery, and when I cried out with my mother's grief, none but Jesus heard me! And a'n't I a woman?

"Den dey talks 'bout dis ting in de head; what dis dey call it?" ("Intellect," whispered some one near.) "Dat's it, honey. What's dat got to do wid womin's rights or n[expletive]'s rights? If my cup won't hold but a pint, and yourn holds a quart, wouldn't ye be mean not to let me have my little half-measure full?" And she pointed her significant finger, and sent a keen glance at the minister who had made the argument. The cheering was long and loud.

"Den dat little man in black dar, he say women can't have as much rights as men, 'cause Christ wan't a woman! Whar did your Christ come from?" Rolling thunder couldn't have stilled that crowd, as did those deep, wonderful tones, as she stood there with outstretched arms and eyes of fire. Raising her voice still louder, she repeated, "Whar did your Christ come from? From God and a woman! Man had nothin' to do wid Him." Oh, what a rebuke that was to that little man.

Turning again to another objector, she took up the defense of Mother Eve. I can not follow her through it all. It was pointed, and witty, and solemn; eliciting at almost every sentence deafening applause; and she ended by asserting: "If de fust woman God ever made was strong enough to turn de world upside down all alone, dese women togedder (and she glanced her eye over the platform) ought to be able to turn it back, and get it right side up again! And now dey is asking to do it, de men better let 'em." Long-continued cheering greeted this. "'Bleeged to ye for hearin' on me, and now ole Sojourner han't got nothin' more to say."



UPDATE: The original post cited Sojourner Truth had ID based on TBI as her primary disability. While this was well documented with Harriet Tubman, Sojourner Truth's memoirs refer to frequent beatings and abuse resulting in a disabled hand and neurodivergence which first manifested in hallucinations when she was enduring a period of sustained physical abuse by slaveowners.   

Because the original version of this post was called into question and it was implied that posts like mine might be considered fake news, I am now honor-bound to provide references for historical information to allow the post to remain published without the taint of fraud. I am always open and grateful for fact-checking because I am also the primary carer for a high support needs son and time constraints may cause errors in my blog posts, but it is was quite painful to note that such calls for fact-checking did not occur about the blog posts of any other blogger in our 889 member group prior to this post, and this makes me wonder how much of this demand was prompted by my race or the fact that I am discussing a disabled woman of color. 

Please note that because this is a blog post and not an academic or commercial publication,  I am simply listing the references without regard to style. KC

References:
Sojourner Truth

Performing Bodies and Performative Texts, Jewon Woo

Resisting the Status Quo: The Narratives of Black Homeschoolers in Metro-Atlanta and Metro-DC, Cheryle Fields-Smith, University of Georgia, Monica Wells Kisura, Trinity Washington University
How the Suffrage Movement Betrayed Black Women, Brent Staples
Let Nobody Turn Us Around: Voices of Resistance, Reform, and Renewal: an African American Anthology, Rowman and Littlefield

 Narrative Of Sojourner Truth, Dictated by Sojourner Truth (ca.1797-1883); edited by Olive Gilbert; Appendix by Theodore D. Weld. 
Boston: The Author, 1850.

History of Women's Suffrage, edited by Elizabeth Cady Stanton, Susan B. Anthony, and Matilda Joslyn Gage

Sojourner Truth: a life, a symbol, Nell Irvin Painter

Sojourner Truth, Bold Prophet: Why Did She Never Learn to Read? Carleton Mabee

Monday, August 27, 2018

#DisabledWhileBlack; Missed Opportunity, #SerenaWilliams, Adaptive Wear, And Intersectionality

Image of a female form clothed entirely in black
 with a Black mask resembling a Black Panther,
she is leaning back against a tree with one arm
 draped over a branch and the other petting a large
 black panther, her fingers seeming to be scratching
the panther's head. The panther's teeth are bared.
credit Marvel.com.
The disability rights conversation around the French Open Committee banning of tennis champion Serena Williams compression catsuit took a singular turn on social media that merits further discussion.

For anyone who may have missed this, Ms. Williams needed a compression suit to reduce clot formation. @Nike created one for her in Black. The suit also had an emotional meaning to her as an athlete forced to make a comeback for the 'crime' of nearly dying giving birth to her daughter Olympia.

I witnessed disability activists discussing this from the perspective of accommodation for disability excluding the rest of Ms. Williams' identities when this entire episode is happening because of the combination of her roles in the African American experience,  her position as a role model for women in sports, African American women survivors of pregnancy and childbirth in our country, and career women punished for giving birth.

I was taken aback by a negative comment about the Black Panther movie reference when discussing the entire kerfuffle. For those who don't know, in the @Marvel Universe Shuri becomes the Black Panther, meaning the Black Panther superhero archetype can potentially transcend gender identities. The Black Panther movie also has historic cultural and emotional importance to our community.

So #SerenaWilliams saying she felt powerful in this catsuit has layers of intersectional meaning addressing how an accommodation for a medical condition can empower disabled bodies and how important character representation is to our disabled and our Black communities. She felt like a Black superhero at this moment and that means more because we now have such characters in major films representing us. For those of us who grew up with the first nonsegregated representations in all media expecting more but remaining disappointed for decades, Ms. Williams gave voice the reality that we feel; the realization of  a small dream deferred too long.  Giving voice to this matters to every young African American child and every Black child globally. It cannot be left out of the catsuit conversation or why this prompted an official to single out this particular suit as an example of what is unacceptable.

How Serena feels in the suit after overcoming a traumatic childbirth also matters and should be
Serena Williams in her awesome catsuit. Credit Nike.
included in any conversation as her high-risk birth was directly related to her health challenges. She is in fact, by virtue of her chronic health conditions, a disabled Black athlete. Sadly, no one in our community is stating the obvious, that despite internalized and externally strong ableism, Serena Williams is a disabled champion athlete who is continuing to compete with her nondisabled peers and defeating them. Making her, in fact, a living icon or hero.


Serena Williams' role as an African American woman who disclosed how she nearly died during childbirth and her struggle to return to health and the fitness needed to be a competitive tennis player again must be included in any disability conversation about the issue of accommodation for her tendency to create clots. 

I am an Afro-Latina disabled woman who nearly died in childbirth and in the fifteen years since the birth of my disabled son, I have not completely recovered. The efforts that African American women like Serena Williams and Beyonce have made to share their stories of survival, recovery, and self-nurturing are life-affirming to me and the thousands of others who have survived this trauma, as well as the families of women like Erica Garner, who have not. Her survival and recovery should be part of any conversation about her need for a compression catsuit.

The conversation about Serena's fashionable adaptive clothing is also a conversation about the fetishizing and patriarchal control over women's bodies. With the tremendous push for the acceptance of disabled bodies and our need for stylish adaptive clothing, this opportunity to discuss the topic was lost as well. 

I am asking disability rights activists to try not to compartmentalize and focus on a single disability aspect of an issue without addressing the intersectional aspects that combine to cause a problem. If the intersectional aspects of any event are something that can't be addressed by you that means that the voices of those who can understand the totality of a hot-button topic should be amplified. Comments that resent the Black Panther catsuit homage aspect of this, the disabled pregnancy and birth for African American disabled women aspect of this, in short, every angle of how this episode matters to our intersectional disabled community does not do this catsuit as adaptive clothing debate justice, and actually erases African American disabled women and treats adaptive clothing as something that is somehow segregated from disability and racial discrimination, disabled maternity, disabled career challenges and disabled POC representation.















Wednesday, June 27, 2018

#AutisticWhileBlack: At the Intersection of Ableism and Racism


 "Microaggressions are the everyday verbal, nonverbal, and environmental slights, snubs, or insults, whether intentional or unintentional, that communicate hostile, derogatory, or negative messages to target persons based solely upon their marginalized group membership"
from Diversity in the Classroom, UCLA Diversity & Faculty Development, 2014


Discussing racial microaggression is always challenging. Anyone who is rightfully called out for any deliberate or unintentional act of racism that to them may appear slight will deny their misstep in defiance of being branded a racist.



This fear of the consequences of being labeled racist has made having an open discussion about this class of oftentimes unintentional insult difficult. Attempts devolve into a  series of skirmishes in which those at fault react by gaslighting accusers into silence, then flip the script and call themselves the victims of hypersensitive minorities policing political correctness. This is something that perpetuates a kind of under the radar racism that is supported by counterattacks like the chastisement of so-called  'victimhood culture.'

Despite all this,  I am entering this moment of trying to speak truth to power through this example to open a dialog that might help reduce such behavior in the autism community with no hope that it will be understood much less heeded.


We are living in one of the worst times for racial aggression and maltreatment since the beginning of the New Jim Crow era.


Seeing racist constructs in an essay written by an author appropriating rare genetic disorders linked to people our race as a convenient literary allusion for any argument adds an additional layer of sad disappointment.

That was my initial reaction to such an allusion used in a disturbing essay about autism labeling by Stephen Prutsman.

This is the paragraph of his essay I mean:

"Consider for a moment if “African American” and “Sickle Cell Anemia” were grouped together; let’s call this hypothetical grouping “AASCA." For some, it would be a beautiful identity full of rich culture, heritage and uniqueness. For others, it is a serious blood disorder found predominately in people of African descent. One can only imagine the confusion, misunderstanding and pain that would ensue if scientists were to lump both under the same category."
The use of the term "African Americans" as a monolithic grouped object and "Sickle Cell Anemia" as an objectified construct in a literary allusion in this manner promotes the subliminal message of the "diseased Black" vs the "healthy Blacks." The reduction of a marginalized group to a construct and placement of a disabled subgroup within that population in implied opposition to the nondisabled group is not only ableist it is a dehumanization created solely to instill discomfort and guilt needed to win a written argument. This falls into a specific category of racial microaggression called microinvalidation.

No one who shares my race would use African American and Sickle Cell Anemia in any allusion about anything because right now, there is a crisis causing premature deaths in African American Sickle Cell patients directly due to race-related disparities in health care, health research, and education of medical teams.  Sickle cell patients suffer bouts of excruciating pain as impacted organs fail, and their suffering is frequently ignored by ER staff believing African Americans have a high tolerance for pain, an old stereotypical holdover from the age of using and abusing the Black body for medical experimentation. Add to this the stereotype that African Americans may be asking for opioids because they are more likely to be drug addicts and you have a perfect storm of racism.


Figure A shows normal red blood cells flowing freely in a blood vessel. The inset image shows a cross-section of a normal red blood cell with normal hemoglobin. Figure B shows abnormal, sickled red blood cells blocking blood flow in a blood vessel. The inset image shows a cross-section of a sickle cell with abnormal (sickle) hemoglobin forming abnormal strands (Information & media from U.S. Department of Health & Human Services) 


The allusion Prutsman makes of lumping  the rare genetic pool of Sickle Cell with the total population of African Americans makes absolutely no sense when in fact the ability to gain the  genetic counseling, services and supports African American Sickle Cell trait and disorder clients need absolutely requires identifying as either a carrier of the trait, or a patient needing health supports and services throughout their lives. Mr. Prutsman's allusion appears to show his complete lack of understanding about invisible and apparent disability and the importance of identity in gaining access to lifelong services and healthcare supports.

Every marginalized group within any community progress by reclaiming or owning labels used to limit or marginalize them and empowering such labels by making them part of a greater individual identity. The term "Black" was reclaimed when I was growing up, and as I and hundreds of other students of color in my generation entered all-white schools to insults, attacks, and abuse, James Brown's "I'm Black and I'm Proud" and similar reclamations of  skin color as identity kept our heads up.

Sickle Cell Trait and Sickle Cell disorders in all stages are both the disability and the disabled identity of those who are diagnosed.

There is a long, painful history involving the African American community and modern medicine and the lack of advancement in the supports and treatment of Sickle Cell patients in adulthood is part of it. We have been subjected to experimentation, sterilization without consent, endemic disparities in medical care that have created another race-based health crisis in America. We women who are African American are dying in pregnancy and childbirth in numbers not acceptable anywhere, much less in a so-called developed nation.

I have spent years trying to think of a way to explain the insult in stereotypical racial microaggressions ingrained in white society that use the monolithic construct of "African American" as an object in literary allusions that dog whistle racism as a method to make an example that they believe will offend others enough to hammer some trivial point home. In this example, I can only guess the author intended  to invoke a genetic illness which in his mind would evoke sufficient pity and validation as a catastrophic enough condition to make his essay readers uncomfortable when paired with "African American."

 But in this moment, where white people are calling 911 on young girls of color selling water, on this anniversary of the death of Tamir Rice, it is not acceptable to use African Americans and rare disabilities in any attempts to dominate the autism or any other unrelated conversation.

Researchers believe that the cumulative impact of racial microaggressions over the lifespan of a marginalized group are more damaging to minorities they target than any single blatant incident of overt racism. There are now ongoing attempts to make POC aware of these microaggressions so that they can act to reduce their impact. At the same time, professionals are trying to educate perpetrators of racial microaggressions while letting them know that intentional or not, such acts cause widespread harm to marginalized people.

Mr. Prutsman could have found any number of literary allusions to make his point without the misuse of African Americans and disabled African Americans. Futhermore, as the Black mother of an autistic son, the use of such offensive constructs alienates me and my disabled son from the autism conversation and this is unacceptable, because we have a right to representation in this community.

I created the hashtag AutisticWhileBlack because macro and microaggressions are embedded in the structure of autism advocacy and it needs to end. Let's begin to make to an effort to improve diverse representation in the autism conversation by not repeating combined racist-ableist gaffes like this one.


Further Reading:
Racial microaggressions in the life experience of Black Americans
By Sue, Derald Wing, Capodilupo, Christian M., Holder, Alisha M. B.
Professional Psychology: Research and Practice, Vol 39(3), Jun 2008, 329-336

Disparities in care of Sickle Cell Patients
Sickle Cell patients suffer as disparities in care and research persist

 Sickle Cell Patients Endure Discrimination, Poor Care, and Shortened LIves

 Sickle Cell Patients, Families, and Doctors Face a FIght for Everything


The Healthcare Crisis of Black Mothers
Black Mothers Keep Dying After Giving Birth. Shalon Irving's Story Explains Why
https://www.npr.org/2017/12/07/568948782/black-mothers-keep-dying-after-giving-birth-shalon-irvings-story-explains-why

Saturday, January 20, 2018

#AutisticWhileBlack: The Terrifying Case of Rebecca Hall

Screenshot of a photo of Rebecca Hall, presented
by her twin during a press conference. Image of
a beautiful Autistic African American young
Woman with center-parted long black hair and
a matching blacktop. © Chandler Family
It was 25 degrees outside that Tuesday, January 9th, 2018. Psychotherapist Imamu Baraka was leaving his office across the street when he saw staff from the University of Maryland Medical Center Midtown in the process of dumping a woman at a bus stop in only a hospital gown and socks. Furious, he began recording the event on his cell phone, called 911, made certain the woman was readmitted to the ER, and concerned no one would believe him, uploaded the video. The frightening footage, evidence of a heinous practice called "patient dumping" went viral.

A week before, Cheryl Chandler had reported her 22-year-old daughter, Rebecca Hall, missing.  Six years ago, Rebecca had been diagnosed with Asperger's and a psychiatric disability.  She had been placed in a group home in Charles County, MD, but later evicted from it on the excuse that she refused to take her medication. Her family enrolled her in what they were told was an intensive inpatient treatment program. How Rebecca went missing from there is not clearly understood.

Her mother was browsing the Internet when she happened upon the trending video and played it. She doesn't remember what happened after the moment she recognized the young woman in the hospital gown on the street was Rebecca. According to family members, she screamed her anguish. Ms. Chandler immediately called the medical center demanding to know the location of her daughter but they refused to tell her. Finally, after calling them, the police were able to locate Rebecca at a homeless shelter.

During a press conference in Rebecca's attorney's offices, unable to hold back tears, Rebecca's twin sister Rosslyn read a letter from Rebecca, thanking everyone for their help, telling everyone she was safe. Ms. Chandler was adamant that Rebecca was not homeless or uninsured, and was very much loved. It was Ms. Chandler who had hired an attorney for Rebecca.

There is such massive failure at the core of what happened to Rebecca. These nightmarish events, that frighten every stakeholder in our community, make it clear that every system that is supposedly in place to help our disabled children throughout their lives is broken. So for Rebecca, I want to not just point out what it means to be #AutisticWhileBlack, but also touch on alternatives steps to eventually ensure that the rest of the lives of our loved ones aren't scenes from American Horror Story.

Late Diagnosis
Rebecca did not receive a diagnosis of Aspergers (a diagnosis that should be ASD because the term Aspergers is no longer part of the DSM-V) until she was 16. Years of coping with a disability no one was aware of might very well result in trauma and subsequent psychiatric disability.  The extreme late diagnosis of African American women and girls, who are already subject to trauma from racial discrimination, colorism, and institutionalized misogyny, requires trauma-informed care solutions. Although the Baltimore City Health Department makes itself available for training in trauma-informed care, UMMC staff has either not availed itself of such training or UMMC is not administrating it. My question here is why?

Group Home Trauma
Then there is the myth that the best care for a disabled young adult with psychiatric challenges is the enforced compliance and regimented schedules of institutionalized settings such as group homes. Peer mentored community living spaces are more cost-effective, empower disabled clients with life skills, and integrate them into their communities such that they are known community members who are simply people neighbors and business owners care about and therefore hire, respect, and accept. The idea that the goal of group home residency is passively ingesting medications and being compliant drives resistance and fear in residence.  We do not know what compelled Rebecca to refuse her medications. She certainly did not wish to be homeless.  Who would? So the question should not be why was Rebecca 'non-compliant' so much as why is Rebecca's trauma, along with the agency she was accustomed to until her diagnosis day, being ignored?

We must move past the stigma and fear of psychiatric disability as it is portrayed in media and grasp that autistic adults who also carry a psychiatric disability label have the same rights as any patient does to safety, respect, and agency in their care.

Mental Health Care Inequity and Disparity
Then there is the injustice of health care inequity and denial for autistics of color in general and those who are autistic while black in particular. A canyon divide in quality of care for autistic children and adults of color and those of affluent white families exists. African American disabled children and young adults are consistently labeled more non-compliant and oppositional than their white peers and rejected more for dental care and primary care than their white peers. What we know about Rebecca's plight is UMMC did not treat her and from the video, she looked injured. Even after Mr. Baraka called 911 and Rebecca was readmitted into the ER, she was sent to another center for treatment and then placed in a homeless shelter.

No Continuity in Procedures for Recovering a Missing Autistic Loved One
Maryland has a silver alert law, passed to speed the locating of a missing senior with conditions like Alzheimer's or Dementia. There is no such law for Autistic children and adults because those opposed to it say that constant alerts would reduce the effectiveness of the two they have. Most of us aren't aware that Amber Alerts apply to a very narrow set of circumstances rather than being an alert for all missing children. Our African American community, in frustration with the lack of interest in our missing youth, has tried to leverage social media to search and find our own missing loved ones. In Rebecca's case, shouldn't the hospital have reached out to the police about Rebecca to ask if she fit the description of any missing person? Who ordered the discharge of a bleeding, vulnerable, near-naked patient to an outdoor uncovered bus stop in record low temperatures? What if Mr. Baraka had not been there filming? I have a nonverbal autistic teen son. The thought chills me to the bone. If Rebecca was in an inpatient program how was she lost? Could a simple medical alert necklace have been used to ensure her safety and identification when she needed help?

Patient Dumping
Patient dumping is against the law. Period. It is clear that Rebecca is not the first or only victim. The only way we can make certain this doesn't happen to anyone else's autistic loved one is to decide what each of us can do to make it clear we won't tolerate this happening to Rebecca or anyone else again. It is up to us. No one is going to do this for us.

Right now, what I see is autistic organizations so engrossed in public policy protests and actions to preserve Medicaid, the Affordable Care Act, and the ADA, (all of which are necessary but not their only obligations) that their primary responsibility as advocacy organizations, to protect autistic people and fight for them, has been ignored since the election. Moreso when the victims of gross maltreatment are disabled people of color. No matter what the crises, labor should be divided so that the primary mandate of autistic, mental health, and disability rights advocacy organizations, advocacy, is fulfilled.

Email your State Departments of Health, your Governors, your state legislators. Tell them Rebecca's story. Tell them to act so this doesn't happen. This could be your son or daughter. Do something, because, at this moment in time, no autism organization seems to give a damn.

Mrs. Kerima Çevik

Resources:

EMTALA Anti-Patient Dumping statue
https://www.healthlawyers.org/hlresources/Health%20Law%20Wiki/Emergency%20Medical%20and%20Labor%20Treatment%20Act%20(EMTALA).aspx

Trauma-Informed Care
https://health.baltimorecity.gov/trauma-informed-care
http://www.traumainformedcareproject.org/

The Story of Rebecca Hall (WARNING FOR DISTURBING IMAGES AND VIDEO THAT MAY BE INCLUDED IN NEWS STORIES)
http://baltimore.cbslocal.com/2018/01/10/woman-left-outside-hospital/http://www.baltimoresun.com/health/bs-hs-patient-dumping-press-conference-20180118-story.html

Thursday, September 7, 2017

Why I Think That Maybe Stafford County Virginia Should Keep Its Confederate Flag




Childhood photo of Neli Latson, a young autistic African American male in crew cut 'fro, white tshirt and red, white, and blue plaid shirt, smiling at the camera, cradled in his mother

This is what I know about Stafford County, Virginia.

When certain members of the community wanted the Confederate flag removed from flying high above the county in public administration and public service areas, the county solution was to move the pole so the flag was still large and visible from I-95 but could not be removed because it was now on private property where it remains to this day.

So the first thing I understood from this is that Stafford County Virginia might be a place where the rule of law can be used to circumvent the law and keep symbols that oppress and offend its marginalized citizens regardless of the will or wish of its communities. Stafford County Virginia might be a dangerous place for marginalized people.

Stafford County is the the place where Reginald Neli Latson, #AutisticWhileBlack, student and beloved member of his high school wrestling team, sat in front of a library that was unexpectedly closed, not knowing that his life would change forever because a white person didn’t like an African American teen just sitting in front of a public space. So that white person(or persons?), nebulous personae who had shifted to become teens, children, a concerned passerby, a crosswalk guard, but whose identity has been protected to this day, made a 911 phone call reporting an armed Black male in front of the library who “looked suspicious.” Neli was unarmed.

Stafford County is the place where an off-duty school resource officer wanted to arrest Neli for something, and when all his questions had been answered and Neli was walking away he said in that way that power addresses the marginalized, “what’s your name, boy?” knowing that in Stafford County it is against the law not to give your name when a law officer asks for it.

Stafford County is the place where the prosecutor dismissed and disregarded Neli’s disability and only saw a case to add to his conviction record. Stafford County is the place where Neli spent years in unjust incarceration and solitary confinement. Stafford County is the place whose hatred stole from a disabled black youth with a promising future his freedom, his civil rights, and his mental health. Stafford County is one of the places in Virginia where a disproportionate number of incarcerated men are intellectually disabled and Black.

Stafford County is where Neli's mother waged a one woman war for his freedom that was so passionate and so desperate that the media finally took notice. Stafford County is where activists like Leroy Moore tried to help free Neli. Stafford County is where his mother and I cried so long during a phone call that my husband came in to ensure everything was alright. Stafford County is where Neli's mother and sister lost everything, and put everything, into trying to get him out of this unjust incarceration.

Oh, I was just as happy as everyone else when Bree Newsome took that flag down from the Statehouse grounds in South Carolina. But that single act, while it has brought all the Confederate flags flying inappropriately in public spaces as well as displays of other symbols of the failed Confederacy everywhere  including  in our National Cathedral to prominence, it doesn't  in and of itself resolve the problem of racism. The fact that it flew there at all is a greater statement to the structural nature of the bigotry we are facing than the attempts to remove these objects from public spaces are. 

I know Stafford County as the county that avoided confronting activists like Bree Newsome by relocating their official Confederate flag on private property and continuing to fly it proudly.

Now we have this new argument that it should not be flown in view of I-95. Local residents, who drove by it for years without questioning but who are afraid Stafford County might become the site of another Charlottesville are now pushing for its removal. But it is not enough to ask that the right thing is done or do the right thing oneself for the wrong reasons. If the flag and all the ugliness it stood for is still firmly planted in the hearts of the people of Stafford County, it should remain flying as a warning to everyone that justice does not abide in that place.

To the rest of African American families across the nation. Perhaps it is time to let those who want to keep the outward manifestations of their own hatred, those who need to embrace the losing side of history reveal themselves. We need to know what is in the hearts and minds of our neighbors. Let them come out of the shadows for all to see. We need to know the scope of what we are facing.

I fear we are returning to a time where we will all need a digital version of the Green Book, and a Confederate flag dotting the map of these unsafe hate filled spaces will let us know that those who govern these spaces espouse white supremacy. We need to use our spending power elsewhere.

I have no wish to visit or even pass through Stafford County Virginia, though I am certain that good people reside there. Many of them came to court and petitioned the judge in Neli Latson's trial for clemency. But I cannot forget the destruction of his life and the heart breaking saga of his tremendous suffering. I cannot forget the retaliatory convenience of the arrest of his mother when her fight to free her son drew too much negative media attention on Stafford County. I cannot forget being forced to watch helplessly as her life fell apart for the sin of trying to save her son from a grave miscarriage of justice.

What I know of Stafford County Virginia will always make it a place marked by the white blight of racial and ableist injustice.

Let them keep their flag public. May those who love the Confederacy drape themselves in it and parade around. We need to know who all of them are. Out of the shadows all of you and all your enablers too. This ugliness and ignorance cannot end otherwise.

I have no wish to go to Stafford County Virginia. Not just because of the ghastly Confederate flag flying over I-95.

Moreso because my son, Autistic and Brown, like Neli Latson, Autistic and Black, has also always loved public libraries. 

I can't risk that he might be next autistic male of color to look suspicious while there.


References:
Stafford County, Virginia's Massive Confederate Flag post-Charlottesville Backlash:
http://www.wusa9.com/news/local/virginia/va-residents-want-confederate-flag-next-to-i-95-taken-down/471789176
Who is Bree Newsome?
https://www.washingtonpost.com/news/arts-and-entertainment/wp/2015/06/28/who-is-bree-newsome-why-the-woman-who-took-down-the-confederate-flag-became-an-activist/?utm_term=.689d63b73b37
About Neli Latson:
Latest News:
Leroy Moore's article:
By the Washington Post's Ruth Marcus:

Thursday, June 29, 2017

#AutisticWhileBlack: Justice For Marcus Abrams

Marcus Abrams after his encounter with police.
Image of the face of an African American male
with injuries to his face Credit City Pages
On Monday, August 31, 2015,  17-year-old Marcus Abrams, legally blind and autistic, was the victim of a catastrophic encounter with Metro Transit police in Minnesota.  Marcus, now accused of punching an off-duty police officer working security at a nightclub, is being scheduled for a competency hearing. He brought suit against the officer who was dismissed from the force and Abrams won a small settlement. Yet here is what the City Pages first reported about what happened back in 2015:

"Tuesday night after Black Lives Matter St. Paul wrapped up its protest of Gov. Mark Dayton, the group gathered in front of the governor’s mansion to hear sisters Jacqueline Vaughn and Neenah Caldwell recount a harrowing interaction between their 17-year-old brother and police.
Vaughn told the crowd that on Monday evening her brother, Marcus Abrams, who is legally blind and autistic, "was coming home from the State Fair and off of Lexington and University was beaten brutally by the police. He was beaten so bad he was in a seizure and declared dead for 15 minutes." She added that police accused her brother of being under the influence.
According to Metro Transit spokesman Howie Padilla, police were driving by the Lexington station at about 7 p.m. that day when they saw Abrams on the light rail tracks, “a dangerous situation for anybody.” Officers asked Abrams to get off the tracks, so the teen jumped back on the platform. Officers then began to question him.
What happened afterward is under review. Video footage of the station is not yet available to the public and Padilla isn’t ready to confirm exactly what led officers to take Abrams to the ground. He said the teen suffered a split lip, though if Abrams also went into a seizure, it would have been beyond the officers’ ability to recognize it definitively.
Padilla said officers eventually called medics and took Abrams to the hospital, where they discussed what happened with his mother. Abrams’ mother said she intended to file a complaint, though has not done so as of Wednesday afternoon.
“After the mother notified us of the teen’s challenges and issues, we determined that he should go home with his mother rather than the juvenile detention center,” Padilla says.
On Tuesday, Vaughn said it was a witness who called an ambulance to take her brother to the hospital."
60 #BLM protestors marching to the Governor's office. Credit
City pages.
Marcus, now 19, suffered a seizure from the beating and was declared dead for fifteen minutes. Please explain how someone legally blind goes from being beaten to having to face charges of attacking an off-duty policeman and now facing a competency hearing? The rapid deterioration and perversion of this case force back haunting memories of the case of Neli Latson. Beyond tactile issues and issues of gait and sensory concerns that have very little to do with competency but are part of an Autism diagnosis, as someone who was blind for a time there is nothing more invasive than being touched without one's consent. It is terrifying regardless of the degree of disability to have some random hands laid on you by people who you may not be able to see well enough to identify. 

Note the lines I highlighted. 1. Abrams followed instructions but was later subjected to such a beating that he had a seizure. 2. The officers' ability to recognize a man having a seizure was said to probably be beyond their abilities. 3. It was a witness who called an ambulance to take Marcus to the hospital. Video footage was not released to the public. It would be revealed later that Marcus was placed in a chokehold preceding the beating.

I don't know if there is video footage from this latest accusation of assault where he was also tasered.
I can't imagine what a taser does to someone with a seizure disorder.

The story of Marcus Abrams is parallel to the story of Reginald "Neli" Latson. After four years of everyone sitting on their hands and Neli suffering the permanent effects of being placed in solitary confinement,  people came together to help Neli's attorneys and they at least freed him from one hell, that of the criminal justice system, but he is still being held in confinement within a facility in the mental health system when he should never have been in either place.

Will we sit on our hands and watch another young man, blind and autistic while black, have his life destroyed like Neli's? Someone has to act now. Someone needs to reach out to #BLM in Minnesota, to his mother and sisters, to his attorney. This time, let's do something before he is irrevocably harmed. 

Let's see how well the white activists who usurped the voices all too familiar with the narrative of the black disabled victims of catastrophic encounters with police step up to the plate now and fight for those whose victimization and subsequent unjust criminalization they've profited from. This is where the bill, for individuals who treat the black disabled body like data to be collected for discourse and display and the human victims of horrific harm like revenue streams and potential training, speaking, and writing for pay fodder can learn what true advocacy means. Marcu Adams should not be stripped of his civil rights and committed to a mental institution. Time to save a life about to be destroyed. 

DO SOMETHING. 

#SaveMarcusAbrams, #Blind and #AutistcWhileBlack

Resources:
The Case of Marcus Abrams
The Case of Neli Latson
Reginald Latson's case points to a major scandal in US prisons:

Saturday, February 25, 2017

Justice for the Dietrich, Idaho Assault Victim, Neurodivergent and Black

Mr. and Mrs. McDaniel with four of their 20 adopted children
©Washington Post/Getty Images
I'm going to mention a violent rape. I will try to be as brief as possible but please don't read on if this topic will upset you. 

I learned today that I can be disgusted, angry, and horrified all at once.

The victim, 18, psychiatric disability community member, one of 20 adoptees to the McDaniel family whose parents are white and live in an area with a predominantly white school, was abused by his own football teammates over a period of months and no one in the school administration or coaching staff acted to stop it. the victim was eventually lured into a locker room by three assailants where his teammates beat him and raped him violently with a coat hanger. 

The McDaniels have an additional five children born to them. I'm not certain how they are able to manage the safety of disabled children of color in a family of 25 children. But there is something more urgent here and that is that Judge Randy Stoker handed down a sentence of 3 years probation to defendant John Howard the main perpetrator of the assault, at the behest of Prosecutor Hemmer. The prosecutor explained to the Judge that the assault was not a rape, hate crime, or any category of sexual assault, but in face a case of bullying, and let the rapist off without jail time. Of course, because Howard was allowed to plead to a charge that was not rape or a hate crime, he will not be a registered sex offender and will be free to assault other African American victims. Co-defendant Tanner Ward's charge of forcible penetration with a foreign object was reduced to a lesser charge and he is being tried as a juvenile. The court and prosecutor also decided Wards actions were not a hate crime. 

When is the disability community going to fight for justice for the Black disabled victims of ableist hate crimes? Are they not aggressively pursuing this because these victims are not white? This is a very sore point for me. I'm tired of seeing this happen time and again with victimized disabled youth of color.

Judge Stoker should be removed from the bench. I will be including links to the Change.org petitions calling for his removal at the end of this blog. Moreover, Prosecutor Hemmer, (who orchestrated the plea deals and reduction of charges, used the victim's disability as justification for why the final horrific assault should not be classified as a sexual assault or a hate crime) should be held accountable. David Perry explains this very clearly in his excellent article on the Dietrich assault in Pacific Standard which you can read here.

The victim never had a chance. He is the victim but being both disabled and Black in an all-white town with parents who cannot teach him about racism because they are white and do not experience it means he was unprepared and also emotionally violated by the judicial system, the school where he should have been safe, and the football team coaching staff who encouraged this abuse. According to the Superintendent of the schools' disclosure of the district's investigation, one teammate tried to stop the attack but was threaten with the same treatment if he interfered. No other classmates fought for him. This is what it means to be Black and disabled in America.

The question is, are there people in the wider world who believe that justice is the entitlement and human right of every citizen in every nation on this planet? Are there people who believe hate crimes are hate crimes when the victim is Black and disabled? 

If you are one of these good people,  please help me step up now and make this right. Because this is an abomination. And if this judgment stands, all disabled children could be next because disabled teens are easy targets and we are living in a time of inflated hate. 

If those families with white disabled loved ones believe that because their children aren't Black, they won't  be targeted next, they are in for a very unpleasant surprise. Once people know they can abuse disabled youth without serious repercussions they will escalate and not stop at Black disabled youth. Our children are just the first targets. They are never the last.

Speak out! Protest this verdict. Justice for the Dietrich, Idaho assault victim! Or sit silently now and wait until your loved ones are the newest targets and it is too late to fight.

My son is nonverbal. Had he been victimized in this sustained and escalated fashion, he could not have told us or defended himself. This is why I am so outraged and so horrified that months of sustained harm get a slap on the wrist. The victim of this sustained series of hate crimes will need therapy for the rest of his life. 

We must act to make this right or we have no purpose in advocacy nor can we call ourselves activists against violence to disabled youth. 

---------------------------------
Resources and Calls To Action
(with thanks to some incredible activists for research, updates, and support)

The Terrifying Story of The Dietrich, Idaho Assault Victim
http://www.dailymail.co.uk/news/article-3616523/Rape-allegation-race-glare-national-media-divide-town.html

How a Prosecutor Decided That an Attack on a Disabled Black Kid Was Just Bullying
David Perry for Pacific Standard:
https://psmag.com/how-a-prosecutor-decided-that-an-attack-on-a-disabled-black-kid-was-just-bullying-51ab84a258a5#.nnt8yqcu4

School Superintendent Investigation Report of Details in the Case Heavily Redacted by School District legal counsel: https://www.documentcloud.org/documents/3115343-DIETRICH-MOTION-DISCLOSURE.html

John R.K. Howard was not charged with a hate for sex crime"
http://m.boiseweekly.com/boise/prosecutor-says-dietrich-high-assault-not-sex-or-race-crime-teen-pleads-guilty-to-lesser-felony/Content?oid=3948761

Co-defendant Tanner Ward not facing felony charges and case to be tried in juvenile court
http://www.idahostatesman.com/news/state/idaho/article104466831.html

Attorneys for McDaniel family petitioning court for unredacted documents. Willing to allow them in the public record to expose cover-up and actions of defendants in their civil case against School district:
http://www.idahostatesman.com/news/state/idaho/article104466831.html

Petitions about the McDaniel hate crimes in Dietrich, Idaho to sign and share:

Change.org Petition: IDAHO JUDICIAL COUNCIL: Remove Judge Randy Stoker from the bench for decision in John Howard rape case  https://tinyurl.com/zwc3zf

MoveOn.org Petition to DOJ: http://petitions.moveon.org/sign/demand-justice-department-1?source=c.em&r_by=8228761.

For further public action:

Please direct public comment about this unfathomable injustice to:

Office of the Attorney General Lawrence Wasden
700 W. Jefferson Street
P.O. Box 83720
Boise, ID 83720-0010
Phone (208) 334-2400
Fax (208) 854-8071

Comments can also be submitted on  the official website here:

http://www.ag.idaho.gov/index.html

What else can you do?
Consider sending an email expressing your concern about the miscarriage of justice in this adjudication of this case. You can do so here:
https://gov.idaho.gov/ourgov/contact.html